5 Things No One Told Me About Being A Special Needs Parent.

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*Editors Note- This is a guest post by Jessica Graham. She is a mother of three kids, all of whom have been adopted and two of whom have significant special needs. Her book Beautiful Paradox: Musings, Marvelings and Strategies of a Special Needs Parent is available on Amazon and is free September 15-16, 2016.

As foster and adoptive parents, many of us are also parenting children with major special needs. Many of us are constantly looking back, before we began this journey, wishing someone would’ve told us what to expect.

Being a parent to a child with medical or developmental needs is as much like being a parent to a typically developing child as it is different. Parenting is hard no matter who your kid is – and no matter who you are. Also, no matter how much you prepare, experience will be your greatest teacher.  But often for those of us who became special needs parents through adoption or foster care, there is an underlying frustrating – why didn’t someone tell me how it really is!

While it’s hard to know the reasons that people don’t share, I think there are several potential reasons: the circumstances are personal and therefore people don’t think that they have shared application; like with childbirth, people prefer to focus on the end result, not the labor; and, last, but not least, because there’s an element of shame.

But sharing the hardships and struggles doesn’t diminish your love for your child or the beauty of how your family was formed. If anything, it highlights the tender mercies given along the way.

Here are five things I wish I had known before I became a special need parent:

  1. There are long stretches of boredom and tedium. As a parent of a child with “extras,” you will have many, many mountain-top experiences (along with corresponding valleys); but, there is also a lot of “busywork” – traveling to and from medical appointments, sitting in doctor’s waiting rooms, and phone calls to the insurance company. These are necessary – but less than stimulating – tasks.You will have to find a way to get used to all of the white noise. For me, listening to podcasts and audio books in the car on the way to and from appointments helps tremendously, as does sitting outside to make medical phone calls – there’s just something about the fresh air that makes that task less onerous.
  2. You will get tripped up by the small things. I can handle surgeries and marathon medical appointments like a pro. When my daughter’s power wheelchair acts up, I can push that 300-pound behemoth up the driveway with no problem. But some days, I get sideswiped by the littlest things.There are times when having to hunt for my son’s nighttime splint feels like the end of the world or when one added doctor appointment makes an entire week go downhill. When this happens, I know that I need to scale back and slow down. A rising tide may lift all boats, but if the boat isn’t properly anchored, it will run aground.
  3. Your ability to relate to other people, and they to you, changes. For a period of time, I worked a full-time job on a part-time basis. Essentially, I was only in the office 3 days a week. It was wonderful and I was so lucky to have gotten to do it. But many people told me how nice it was that I had days “off.” Sure, there were days that I didn’t go into the office and that was a luxury in every sense of the word – but there were no days off. The days that I wasn’t at work, I was taking kids to therapy, or the specialist, or wherever. It baffled me that people couldn’t comprehend the medical workload. But the reality is, I didn’t understand it either – until I lived it.But relating to others is a two-way street. Recently another mother commented about how nice it was that her kids are big enough that she didn’t need to constantly be in the pool with them. I don’t even know this woman and I got all snarky. “Yeah, nice for you,” I thought. You see, her kids are my kids’ ages, but we haven’t reached the mommy-on-the-side-of the-pool stage yet. But my circumstances in no way changed that woman’s reality, just as her circumstances don’t change mine – I’m a better person when I remember that.
  4. You will experience life in a whole new way. Not because a good fairy hands you rose-colored glasses but because you become a better observer of life. The simple (and often unwelcomed) truth is that struggle gives our lives added dimension. When things are easy, we barely notice the green grass and blue skies. But when we have to paddle upstream, suddenly we don’t just notice these things – we see them.A few years ago, prosthetic running blades were a big news story. People couldn’t stop talking about how amazing the technology was and about how light the blades were. As someone familiar with prosthetics, all I could think about was how many times the runner had likely fallen down – and gotten back up again. I marveled just like everyone else, but for entirely different reasons.
  5. The thing you fear the most will be the thing you expect the least. There are so many scary things about being a parent: the fact that we can’t spare our children pain, uncertain futures, and medical issues beyond of control. But over time, I realized the thing that I feared the most was: me. I had a child who needed more of me than some days I wanted to give, and I had to figure out how to help us both. It was a painful and profound process, and I’m grateful for who it has made me.

Are you parenting a child with special needs? What have you learned from the journey?

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Mike and Kristin Berry are the Co-Founders of The Honestly Adoption Company and have been parents for nearly two decades. They are the authors of six books, and the host of The Honestly Adoption Podcast.

Sarah Gray

Sarah Gray is the executive assistant to Mike and Kristin Berry. And she is the best in the land. In addition to providing a warm and friendly response to the many emails our company receives on a weekly basis, she also manages Mike and Kristin’s speaking and meeting schedules, and makes sure that team events go off without a hitch.

Nicole Goerges

Nicole Goerges is a Content Contributor & Special Consultant for The Honestly Adoption Company. She works with Mike and Kristin as a recurring co-host for the Honestly Adoption Podcast, and co-host of Kitchen Table Talks, exclusive video content for Oasis Community, along with Kristin. She is a fellow adoptive mom, and former foster parent.

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Matt McCarrick is the Content Production Specialist for The Honestly Adoption Company. If you’ve loved listening to our podcast, or enjoyed any of the videos trainings we’ve published, you have Matt to thank. He oversees all of our content production, from video edits, to making sure the tags are correct on YouTube, to uploading new videos to Oasis, to hitting publish on a podcast episode, he’s a content wonder!

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Karen Anderson is the Community Engagement Specialist for The Honestly Adoption Company. She spends the bulk of her time interacting with, and helping, people through our various social media channels, as well as providing support for Oasis Community members through chat support or Zoom calls. In the same spirit as Beaver, Karen is also passionate about connecting with parents and making them feel loved and supported. Karen is also an FASD trainer and travels often, equipping and encouraging parents.

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Beaver Trumble is the Customer Care Specialist for The Honestly Adoption Company. Chances are, if you have been in need of technical support, or forgotten your password to one of our courses, you have interacted with Beaver. He is an absolute pro at customer care. In fact, he single-handedly revolutionized our customer care department last year. Beaver is passionate about connecting with parents and making them feel loved and encouraged.

Kristin Berry

Kristin Berry is the co-founder of, and Chief Content Specialist for, The Honestly Adoption Company. She spends most of her time researching and connecting with guests for our podcast, as well as direction, designing and publishing a lot of the content for our social media channels, blog and podcast. She loves to connect with fellow parents around the world, and share the message of hope with them.

Mike Berry

Mike Berry is the co-founder of, and Chief Marketing Specialist for, The Honestly Adoption Company. He spends the bulk of his time and energy designing and building many of the resources you see within our company, as well as social media and email campaigns. His goal is to use media as a means to encourage and equip parents around the world. He is also the co-host of The Honestly Adoption Podcast.